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Debs
#1 Posted : Monday, September 26, 2011 2:27:12 PM Quote
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Joined: 9/9/2010
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Location: Hampshire
Hi All
I suffered a flare up last Wednesday. The top of my right arm became very painful during the day. By the evening it was awful I took paracetomol but it didn't make any difference. By 4.30am on Thursday morning I was in so much pain my husband took me to A&E. I was put on a drip with liquid paracetomol but that didn't help so I had liquid morphine which kicked in quickly and did help ease the pain. I have never in my life suffered from such pain and my arm still feels tender Sad Tomorow I have an appointment at the hospital so I will discuss it with the consultant. It's been a year since I was diagnosed and this is the first time I have suffered such pain. I take sulfasalazine and hydroxchlorquine. Is it normal for flare ups to come completely out the blue?
Take care everyone
Debs xx
suzanne_p
#2 Posted : Monday, September 26, 2011 2:41:49 PM Quote
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Location: Buckinghamshire
hi Debs,

so sorry to hear what you've been through ..sounds awful !!

fortunately i've never been in that position so can't answer further,

hope you continue to improve.

Suzanne x
Rose-B
#3 Posted : Monday, September 26, 2011 3:27:37 PM Quote
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Location: Somerset

hello Debs

So you have been in so much pain and ended up in Hospital.

I believe that you can get a sudden flare, however with regard the medicines you
are taking I cannot specifically answer.

Hope you go ok at the Spec tomorrow. Good luck

Rose
jenni_b
#4 Posted : Monday, September 26, 2011 4:15:01 PM Quote
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Joined: 12/3/2009
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Location: nr Southampton
O Debs how miserable

I had my first big attack from the RA in my shoulder/ arm- I really thought I had dislocated it.

I do think it can help to keep a diary and use the traffic light system and then you can spot when the flair ups are more likely to come.

They do come out of the blue sometimes but normally there is a heap of stress or lots of activity in a short time around the time of the flair. When I started the RA it was all over the place.

Didnt seem any rhyme nor reason the places it would attack.

Sending a (very gentle) hug.

Jenni xx
how to be a velvet bulldoser
Naomi1
#5 Posted : Monday, September 26, 2011 6:18:57 PM Quote
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Joined: 9/3/2011
Posts: 717
Location: Torbay
I had suffered from fatigue and minor migrating joint pains in ankles, hands, toes and elbows for about 2 years and made numerous visits to the GP. Test repeatedly came back 'negative' and I did not get a referral so was made to feel it was all in my head. Why my GP didn't seem to know that about 1/3 of people with RA test negative for rheumatoid factor I really cannot fathom. Surely they are trained to know this! However in April of this year I became virtually paralysed by pain and locked joints (nearly all of my joints) almost overnight (as well as other systemic symptoms) and could barely move for 4 weeks whilst waiting for a 'rapid access' rheumatologist appointment. So yes flares can come out of the blue.

I finally have the diagnosis that has enabled me to have disease modifying treatment. I really sympathise with your pain. It can be horrendous! I honestly felt like I was trying to move fractured bones when I woke up in the mornings during my sever flare. I now call it 'the mother flare'.
I do hope things settle down for you and send my best wishes and very soft hugs to you.

Naomi.
JulieM
#6 Posted : Monday, September 26, 2011 6:55:54 PM Quote
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Joined: 12/4/2009
Posts: 1,524
Location: W. Yorkshire
Oh dear I'm sorry you folks have been suffering so much. I haven't experienced anything like that so far (touch wood) so I can't offer any advice I'm afraid.
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
heather1
#7 Posted : Monday, September 26, 2011 8:34:03 PM Quote
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Location: hampshire
Hi Debs, the very same thing happened to me 2 years ago I woke up with a sore arm which got progressively worse as the day went on. I took loads of painkillers but the pain got so bad I had to call out a duty doctor. He prescribed diazapan which was the oly thing I could take having taken the full whack of painkillers during the day. This happened just before I was dx with RA.

Really hope you get some relief soon.

Love Heather xxx
Debs
#8 Posted : Tuesday, September 27, 2011 11:14:33 AM Quote
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Location: Hampshire
Hi
Thank you all for replying. I have been to see the consultant at the hospital this morning and I am to stop taking the sulfasalazine because of my sore mouth and if my mouth improves I am to start taking the sulfasalazine again also if I have another flare up I am to have a steriod injection. Hopefully things will settle down otherwise methotrexate was mentioned.
Take care Debs xxx
sheila_G
#9 Posted : Tuesday, September 27, 2011 9:44:13 PM Quote
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Location: North Preston
Hi Debs

I Hope you are feeling much better now. What a rotten time you have had. I have had lots of problems with my shoulders but nothing like you have experienced.

Sheila x
Tracy-Street
#10 Posted : Wednesday, September 28, 2011 11:51:42 PM Quote
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Location: Wilts, nr Stonehenge
Hi Debs,

I can empathise with you. I think the shoulder and ribs are the WORST pain. It feels like I have a heavy weight pulling my arm out of it's socket. i had a flare in my shoulder last week, it's still tender.

Sorry you have experienced this awful pain Debs.

Hope it feels better very soon.

Trace xx
jeanb
#11 Posted : Thursday, September 29, 2011 8:32:26 AM Quote
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Location: Timperley
Hi Debs

Really hope things are starting to settle down now and the pain is easier. I also know how awful it is to have a mouth full of ulcers and the like. Have you been given anything to take to help with this?

Take care

Love Jeanxx
Debs
#12 Posted : Thursday, September 29, 2011 10:49:47 AM Quote
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Location: Hampshire
Hi All
I'm feeling really low today. I'm rinsing with salt water to help ease the pain in my mouth. I have tried different tablets and gels but nothing seems to work. As I've been taken off the sulfasalazine hopefully it will start to ease as the consultant thinks it could well be the sulfasalazine that is causing the problem and I think it probably is as well. I'm feeling very tired and achey. Going to Wales tomorrow with hubby and friends for the weekend I certainly won't be charging about!!!!!!!!RollEyes going to take it easy, enjoy the sea air and views and hopefully go up snowdon by train and enjoy the view (if its not cloudy)!!!!!!
Thank you all for your support at least the sun is shining!!BigGrin
Take care Debs xxx
dorat
#13 Posted : Thursday, September 29, 2011 12:07:59 PM Quote
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Location: Huddersfield
Hi Debs,

Have you tried Oraldene mouthwash? I find it quite soothing for mouth ulcers.
Have a nice relaxing weekend,

Love Doreen xx


sheila_G
#14 Posted : Thursday, September 29, 2011 8:44:50 PM Quote
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Location: North Preston
Hi Debs. Hopefully the weekend away with the nice weather will boost your spirits. Hopefully your mouth will start to feel better soon too.

Sheila x
Debs
#15 Posted : Tuesday, October 04, 2011 3:47:39 PM Quote
Rank: Advanced Member

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Joined: 9/9/2010
Posts: 77
Location: Hampshire
Hi All

I'm back from having a spent a lovely long weekend in Wales with the sun shining nearly all the time!!!!Smile

It has been exactly a week since I have stopped taking the sulfasalazine tablets and my mouht is beginning to feel so much better so I can only assume that it was the tablets that were causing the problems. I am supposed to start taking them again after two weeks but only take 4 instead of 6 tablets a day. Hopefully my sore mouth won't return I shall have to wait and see!!!!!!
Take cae everyone Debs xxxx Smile Smile
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